ALL ALS Consortium Studies

Access for All in ALS 

The ASSESS study combines a longitudinal natural history study and biomarker collection for ALS. It aims to make ALS research inclusive and accessible to everyone, including those who cannot visit academic medical centers, through new technology that allows remote participation. We are looking for participants, both people currently living with ALS and asymptomatic ALS gene carriers, to help gain deeper insights into ALS and improve future clinical trials.

Principal Investigator: Shafeeq Ladha, MD

Enrollment Contacts:

Christopher Shriver
(602) 406-1466

PREVENT ALS

The PREVENT study is recruiting participants to explore the natural history of ALS, focusing on its earliest signs in asymptomatic ALS gene carriers. This research aims to enhance our understanding of the disease, paving the way for more targeted and personalized drug development. By advancing these efforts, the study brings us closer to the goal of halting, repairing, and preventing ALS.

Principal Investigator: Shafeeq Ladha, MD

Enrollment Contacts:

Christopher Shriver
(602) 406-1466